5 questions to… Dystonia Europe

Every month we put the spotlight on one of our members. Today, we are delighted to catch up with Dystonia Europe , which recently joined EPF.   What’s on top of your More »

‘Young Patients: Ready, Brilliant and Able to work!’

On Friday 20th May 2016, youth leaders from the EPF and European Multiple Sclerosis Platform (EMSP) co-hosted a workshop at the European Youth Event (EYE) in Strasbourg.   The main objectives of More »

Self-Care a Game-Changer for Chronic Diseases Prevention – EHP Recommendations

Chronic diseases are responsible for 86% of all deaths in the EU. Only 3% of health budgets are devoted on prevention activities. Time for a change, calls the European Health Parliament. It More »

5 questions to… International Bureau for Epilepsy

Every month we put the spotlight on one of our members. Today, we are delighted to put the International Bureau for Epilepsy to our now famous short questionnaire! What’s on top of More »

EFCCA Thomas testimonial

My name is Thomas and in December 2011 I was diagnosed with Crohn’s Disease, which is a type of Inflammatory Bowel Disease (IBD). Like everyone who is diagnosed with a chronic illness More »

 

An Englishman in Brussels

For three months Laurence Woollard represented the EPF Youth Group within our Secretariat. Now that his time in Brussels comes to an end, let’s look in the mirror and ask him about

5 questions to… Dystonia Europe

Every month we put the spotlight on one of our members. Today, we are delighted to catch up with Dystonia Europe , which recently joined EPF.   What’s on top of your

‘Young Patients: Ready, Brilliant and Able to work!’

On Friday 20th May 2016, youth leaders from the EPF and European Multiple Sclerosis Platform (EMSP) co-hosted a workshop at the European Youth Event (EYE) in Strasbourg.   The main objectives of

Self-Care a Game-Changer for Chronic Diseases Prevention – EHP Recommendations

Chronic diseases are responsible for 86% of all deaths in the EU. Only 3% of health budgets are devoted on prevention activities. Time for a change, calls the European Health Parliament. It

5 questions to… International Bureau for Epilepsy

Every month we put the spotlight on one of our members. Today, we are delighted to put the International Bureau for Epilepsy to our now famous short questionnaire! What’s on top of

EFCCA Thomas testimonial

My name is Thomas and in December 2011 I was diagnosed with Crohn’s Disease, which is a type of Inflammatory Bowel Disease (IBD). Like everyone who is diagnosed with a chronic illness

European Conference on Rare Diseases & Orphan Products

On 26 to 28 May, our member EURORDIS is organizing the eighth edition of the European Conference on Rare Diseases & Orphan Products (ECRD) in Edinburgh, UK. Rare diseases stakeholders from across

5 questions to… the International Federation of Spina Bifida and Hydrocephalus (IF)

EPF is proud of its members’ and their work. We are delighted to feature one of our 67 member organisations on our blog and share their successes and achievements. This month we

EPF Youth Group Annual Spring Meeting

On 19th and 20th March, the EPF Youth Group gathered in Brussels for its two-day Spring Meeting to discuss key issues, such as capacity development, preparatory work for the Roundtable on Transition

EPF Youth Group Roundtable on Transition to Adult Care

On 21st March, the Youth Group conducted a roundtable on transition from paediatric to adult care, attended by representatives of patient organisations, health groups, as well as healthcare professionals and delegates of