MOPEAD: Promoting Patient Engagement in Alzheimer’s Disease

Alzheimer’s disease (AD) has been recognised as one of the biggest health and societal challenges of our times.  The number of people directly affected by the disease will continue to rise and More »

Cluster Headaches – Not Just Another Headache

“A searing pain like a red-hot poker piercing through your eye that prevents you from remaining still or from lying quietly in a darkened room” – this is how patients describe Cluster More »

Not Everyone Is Welcome Aboard: Oxygen-Dependent Patients Are Facing Discrimination When Taking a Plane

More than 3.5 million people need medical oxygen in Europe and many are advised to travel to regions with temperate climates that will ease the symptoms of their disease. However the free More »

More than Meets the Eye

Matthew Michael Attard joined the EPF Secretariat in Brussels at the beginning of March, as a trainee representing the EPF Youth Group. A patient with chronic conditions himself, Matthew will coordinate the More »

EPF VIDEO – Our Members, Our Compass!

The feedback from our members is the backbone of our work. The new EPF video will tell you all about our consultation processes, and how we can support our members growing, for More »

 

MOPEAD: Promoting Patient Engagement in Alzheimer’s Disease

Alzheimer’s disease (AD) has been recognised as one of the biggest health and societal challenges of our times.  The number of people directly affected by the disease will continue to rise and

Cluster Headaches – Not Just Another Headache

“A searing pain like a red-hot poker piercing through your eye that prevents you from remaining still or from lying quietly in a darkened room” – this is how patients describe Cluster

Not Everyone Is Welcome Aboard: Oxygen-Dependent Patients Are Facing Discrimination When Taking a Plane

More than 3.5 million people need medical oxygen in Europe and many are advised to travel to regions with temperate climates that will ease the symptoms of their disease. However the free

More than Meets the Eye

Matthew Michael Attard joined the EPF Secretariat in Brussels at the beginning of March, as a trainee representing the EPF Youth Group. A patient with chronic conditions himself, Matthew will coordinate the

International Parkinson’s Community Get Together

Each year, Parkinson’s organisations and individuals across the world observe 11 April as World Parkinson’s Day. This year’s World Parkinson’s Day is a landmark anniversary, as the date marks 200 years since

Addictions – A Multi-Level Model for Efficient Treatment

Addictions are unique and devastating diseases: they affect the body, the mind and the spirit of a person. Understanding the multifaceted impact they have is a critical step towards an effective treatment.

A Training Day at European Medicines Agency – EPF Youth Group

Lembe Kullamaa, Member of EPF Youth Group took part in November 2016 in a European Medicines Agency (EMA)’s training directed to patients and consumers. She tells us more about this interesting and

EPF VIDEO – Our Members, Our Compass!

The feedback from our members is the backbone of our work. The new EPF video will tell you all about our consultation processes, and how we can support our members growing, for

OPINION – French Presidential Election 2017: 5 Key Topics for Access to Healthcare

Public health does not usually play a big role in the French political debates. But this year might be different. Our French member LE CISS tells us why in an opinion letter,

Living with Auto-Immune Diseases: A Patient Testimonial

Read here the very eye-opening testimonial from Katharine Wheeler, from LUPUS Europe, on the importance of patients’ feedback in diagnosis.   I have a collection of auto-immune diagnoses, one of them is