European Society of Radiology: Involving Patients for Better Safety

The European Congress of Radiology (ECR) took place in Vienna from 1-5 March 2017 providing a platform to discuss strategies towards improved patient safety and quality of care. Patients and healthcare professionals More »

5 Questions to the European Congenital Heart Diseases Organisation (ECHDO)

Every month we put the spotlight on one of our members. Today, we are delighted to catch up with the European Congenital Heart Disease Organisation (ECHDO), who recently joined EPF. What’s on More »

Survey Shows Substantial Impact of Rare Diseases on Daily Life

EURORDIS-Rare Diseases Europe ran the first Europe-wide survey on the social impact of rare diseases. Results demonstrate a serious impact on everyday life for over 80% of patients and families. Over 3,000 More »

World Continence Week – No More Stigma

Every year, the World Continence Week (WCW) raises awareness about incontinence-related issues. Coordinated by EPF member World Federation of Incontinent Patients (WFIP), this year’s initiative offered plenty of activities and workshops to More »

5 Questions to: BAG SELBSTHILFE, German national coalition of patient organisations and disability groups

Every month we put the spotlight on one of our members. Today, we are delighted to catch up with BAG SELBSTHILFE, the German national coalition of patient organisations and disability groups, who More »

 

European Society of Radiology: Involving Patients for Better Safety

The European Congress of Radiology (ECR) took place in Vienna from 1-5 March 2017 providing a platform to discuss strategies towards improved patient safety and quality of care. Patients and healthcare professionals

5 Questions to the European Congenital Heart Diseases Organisation (ECHDO)

Every month we put the spotlight on one of our members. Today, we are delighted to catch up with the European Congenital Heart Disease Organisation (ECHDO), who recently joined EPF. What’s on

Survey Shows Substantial Impact of Rare Diseases on Daily Life

EURORDIS-Rare Diseases Europe ran the first Europe-wide survey on the social impact of rare diseases. Results demonstrate a serious impact on everyday life for over 80% of patients and families. Over 3,000

World Continence Week – No More Stigma

Every year, the World Continence Week (WCW) raises awareness about incontinence-related issues. Coordinated by EPF member World Federation of Incontinent Patients (WFIP), this year’s initiative offered plenty of activities and workshops to

EULAR Annual Congress – Perspective of the EPF Youth Group

Representing the EPF Youth Group, Lembe Kullamaa attended the yearly EULAR (European League Against Rheumatism) congress in Madrid on 14-17 June 2017. Speaking on employment issues for young patients, Lembe underlined the

5 Questions to: BAG SELBSTHILFE, German national coalition of patient organisations and disability groups

Every month we put the spotlight on one of our members. Today, we are delighted to catch up with BAG SELBSTHILFE, the German national coalition of patient organisations and disability groups, who

Overcoming a Chronic Disease: The Best is Yet to Come

Hello, my name is Andreas, I am 27 years old and I come from Cyprus, an island in the Mediterranean Sea. I may look like a typical guy living his own life

Sophie, 16, Helps School Staff Dealing with Lupus Young Patients

Sophie is a young patient suffering from Lupus, a severe auto-immune disease that impacts her time at school. She recently started a project raising school staff’s awareness of this invisible disease, to

Running the Streets for A Good Cause – Mental Health Europe

On May 28th, Mental Health Europe (MHE) will bring together a team for the Brussels 20 KM to raise awareness about mental health issues and support its European anti-stigma campaign Each of

European Solidarity Corps: Getting it Right for Europe’s Patients!

Announced by the President of the European Commission Jean-Claude Juncker in his annual address before the European Parliament in Autumn 2016, the European Solidarity Corps aims to offer volunteering and work placement