European Conference on Rare Diseases & Orphan Products

On 26 to 28 May, our member EURORDIS is organizing the eighth edition of the European Conference on Rare Diseases & Orphan Products (ECRD) in Edinburgh, UK. Rare diseases stakeholders from across More »

5 questions to… the International Federation of Spina Bifida and Hydrocephalus (IF)

EPF is proud of its members’ and their work. We are delighted to feature one of our 67 member organisations on our blog and share their successes and achievements. This month we More »

EPF Youth Group Annual Spring Meeting

On 19th and 20th March, the EPF Youth Group gathered in Brussels for its two-day Spring Meeting to discuss key issues, such as capacity development, preparatory work for the Roundtable on Transition More »

EPF Youth Group Roundtable on Transition to Adult Care

On 21st March, the Youth Group conducted a roundtable on transition from paediatric to adult care, attended by representatives of patient organisations, health groups, as well as healthcare professionals and delegates of More »

Declaration Fest! International Festival of Health and Human Rights

March 2016 saw the launch of a brand new festival in Scotland, Declaration Fest, exploring health and human rights. The festival was led by the Mental Health Foundation, in partnership with NHS More »

 

European Conference on Rare Diseases & Orphan Products

On 26 to 28 May, our member EURORDIS is organizing the eighth edition of the European Conference on Rare Diseases & Orphan Products (ECRD) in Edinburgh, UK. Rare diseases stakeholders from across

5 questions to… the International Federation of Spina Bifida and Hydrocephalus (IF)

EPF is proud of its members’ and their work. We are delighted to feature one of our 67 member organisations on our blog and share their successes and achievements. This month we

EPF Youth Group Annual Spring Meeting

On 19th and 20th March, the EPF Youth Group gathered in Brussels for its two-day Spring Meeting to discuss key issues, such as capacity development, preparatory work for the Roundtable on Transition

EPF Youth Group Roundtable on Transition to Adult Care

On 21st March, the Youth Group conducted a roundtable on transition from paediatric to adult care, attended by representatives of patient organisations, health groups, as well as healthcare professionals and delegates of

Declaration Fest! International Festival of Health and Human Rights

March 2016 saw the launch of a brand new festival in Scotland, Declaration Fest, exploring health and human rights. The festival was led by the Mental Health Foundation, in partnership with NHS

EFNA Campaign: 1 in 3 Europeans fit under the Umbrella – Do You?

‘Together Under the Umbrella’ is the new campaign of our member the European Federation of Neurological Associations (EFNA). It aims to raise awareness on the range and prevalence of brain disorders. Quick!,

“We don’t want to be just part of the problem – we want to be part of the solution!”

This is my first blog post for EPF, and I am thrilled to be able to share my views with so many dedicated readers.  As a physician, a scientist and a breast

EPF Youth Group welcomes Anna!

My name is Anna, I am 26 years old and I come from Italy. I also have Multiple Sclerosis (MS). MS is a neurodegenerative disease affecting the central nervous system causing physical

International Diabetes Federation Europe in the spotlight

What’s on the top of your agenda? Political advocacy remains a priority, both nationally and at a European level, on policy development and implementation. But this does not diminish any focus on

ENUSP’s 6th Empowerment Seminar in Brussels

On the first day, the Chair of ENUSP, Olga Kalina, presented an overview of the activities that took place during the past year. Among them were the submission of our Shadow Report