Category Archives: Featured

EPF Youth Group Meeting: Brainstorming the Future

This year’s EPF Youth Group spring meeting was held in beautiful Vienna and began with a group dinner to catch up and welcome the new members in to the EPF family. Jana

EURORDIS Summer School – a week of inspiration

In June I had the great honor to participate in the professional Expert Patients and Researchers Summer School, organised by EURORDIS (Rare Diseases Europe). The event took place in the beautiful city

5 Questions to: SAFE, the Stroke Alliance for Europe

From time to time, we like to put the spotlight on one of our members. Today, we are delighted to catch up with SAFE, the Stroke Alliance for Europe, who recently joined

Making personalisation possible

Personalised care offers countless benefits to people living with multiple long-term conditions. When shaped around the individual, personalised – or person-centred – care empowers people to manage their conditions, prioritising the needs

Employment and Tourettes

What is Tourette Syndrome? Tourette Syndrome (TS) is a neurological condition estimated to effect over 300,000 children and adults in the UK.  The main symptoms are physical and vocal tics, which typically

We want equal access to health for all!

The European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) has recently published the findings from its project “Mapping of innovative medicines and devices in EFCCA member countries” in which 31 countries

MEN, WORK AND CANCER: a guide for men staying or returning to work after a cancer diagnosis

In November the European Men’s Health Forum launched a unique guide to support men staying or returning to work after a cancer diagnosis.  The first resource of its kind and funded by

EUFAMI Celebrates ‘Home’ – Art for Better Mental Health

EUFAMI celebrated its 25th anniversary in November by organising an art exhibition to promote better mental health.  A total of 25 artists from across Europe participated in an exhibition in Brussels framed

IDF Europe celebrates World Diabetes Day in the EU Institutions!

World Diabetes Day was celebrated on 14 November all around the word, and EPF member IDF Europe organised several activities in the European institutions to bring the topic and their advocacy work

Social Media Milestones for the EPF Youth Group

In November, the EPF Youth Group revealed two exciting social media projects that will contribute to further raise the Youth Group’s profile and reach more young patients throughout Europe: a video on