The European Multiple Sclerosis Platform represents 700,000 people affected by multiple sclerosis (MS). This month Emma Rogan talks about Paving the Path to Participation, a project focused on access to employment for people with MS and the Employment Pact, a commitment and checklist to best practice in the workplace.
Work is means much more than just money in your pocket. Having a job creates a sense of purpose, social engagement, boosts self-confidence and gives people a chance to fulfil their ambitions. MS, like other chronic conditions, impacts people’s lives irreversibly, confronting people with difficult situations and changing circumstances.
The EMSP Employment Pact is a map and a checklist to assist everyone who is impacted- employers, policy makers and people with MS and other chronic conditions – in the workplace. Suggestions include flexible working hours, accessible building and toilet facilities, diversity and inclusion training for staff and evaluation of practice, policy and supports for planned ‘return to work’ and designated rest area for staff.
Businesses can incorporate this tool as part of responsible business practices and as a signal to current and potential staff of commitment to support people with chronic illness to stay or return to work. Policy makers can use it to gain a better understanding on what needs to be implemented in daily best practice in the workplace. People with MS can finally use it in their discussions with their employers on how to best manage the effects of the condition in a way that is beneficial for all.
MS is often diagnosed during the prime working years of life (20-40 years of age), a time when people are building their careers and making plans for their future. Unfortunately, up to 80% of people with multiple sclerosis stop working within 15 years of diagnosis, losing on average 18 years from their working life. This is a massive loss of human potential as well as having economic implications for society. But it does not need to be this way.
What if the situation was different? What if people understood it is possible for people with MS and chronic conditions to stay in the workplace given the right support? People would have flexibility to manage their workday and employers would benefit by retaining staff, demonstrating responsible business practices and proactively dealing with challenges of a changing workforce. Implementation of good practice if good for business.
On 2-3 December there will be an EU Commission Conference about access to employment for people with disabilities to mark the European Day of Persons with Disabilities. Emma Rogan will be speaking about the importance of flexibility by all parties and how people with chronic illness who are well enough, can maintain their ambition and stay in work.
EMSP would like your feedback on the Pact and how it may be of use to you, your business or your organisation. Please send your comments and suggestions to Emma Rogan emma.rogan@emsp.org.
