EPF Youth Group Meeting: Brainstorming the Future

This year’s EPF Youth Group spring meeting was held in beautiful Vienna and began with a group dinner to catch up and welcome the new members in to the EPF family. Jana More »

EURORDIS Summer School – a week of inspiration

In June I had the great honor to participate in the professional Expert Patients and Researchers Summer School, organised by EURORDIS (Rare Diseases Europe). The event took place in the beautiful city More »

5 Questions to: SAFE, the Stroke Alliance for Europe

From time to time, we like to put the spotlight on one of our members. Today, we are delighted to catch up with SAFE, the Stroke Alliance for Europe, who recently joined More »

Making personalisation possible

Personalised care offers countless benefits to people living with multiple long-term conditions. When shaped around the individual, personalised – or person-centred – care empowers people to manage their conditions, prioritising the needs More »

Employment and Tourettes

What is Tourette Syndrome? Tourette Syndrome (TS) is a neurological condition estimated to effect over 300,000 children and adults in the UK.  The main symptoms are physical and vocal tics, which typically More »

 

IDF Europe celebrates World Diabetes Day in the EU Institutions!

World Diabetes Day was celebrated on 14 November all around the word, and EPF member IDF Europe organised several activities in the European institutions to bring the topic and their advocacy work

Social Media Milestones for the EPF Youth Group

In November, the EPF Youth Group revealed two exciting social media projects that will contribute to further raise the Youth Group’s profile and reach more young patients throughout Europe: a video on

What Place for Healthcare in Ireland? Are there Implications for Europe?

May 2017 marked a landmark in Irish healthcare planning. Under the leadership of Parliamentarian Roisin Shortall, the report of the Houses of the Oireachtas (National Parliament) was published and signed up by

World Mental Health Day: Wellbeing at Work is an Asset

“Mental health at work should be considered as an asset”. That was the key message sent by experts on World Mental Health Day (11/10). A better dialogue between employees and organisations, implementation

Youth Cancer Europe 2017 Meeting – ‘Patients Are Not Alone’

Andreas Christodoulou (EPF Youth Group and cancer survivor) attended the recent congress of Young Cancer Europe held in Vilnius Lithuania in late August. A great opportunity for him to share his experience

From Nurse to Equal Partner: Read the Story of Inge, IBD Belgian Patient

I was diagnosed with colitis ulcerosa (inflammatory bowel disease or IBD) in 2000 after a year of fatigue and medical problems. Putting a name and some words on my symptoms was a

Experts Pave the Way for Better European Pain Policy

From the 7th to the 08th of June, the city of Valetta in Malta hosted the Societal Impact of Pain (SIP) symposium. Patients, healthcare professionals, researchers and European politicians came together to

5 Questions to: the Swedish Disability Rights Federation

Every month we put the spotlight on one of our members. Today, we are delighted to catch up with the Swedish Disability Rights Federation, who joined EPF in April 2017. What’s on

Join the call to action on allergy and asthma!

Patients, doctors and Members of the European Parliament Interest Group on Allergy and Asthma have launched a call to action to improve the quality of life of allergy and asthma patients. See

New Alzheimer Europe Survey Highlights Inequalities in Access to Dementia Care and Treatment across Europe

Not everybody is equal when it comes to dementia care and treatment. This is the telling result of the recent Alzheimer Europe’s report entitled the “European Dementia Monitor”, which assessed countries for